Approximately one in every 700 babies in the United States is born with Down syndrome, according to the National Down Syndrome Society. That makes Down syndrome the most common chromosomal condition, which can cause low muscle tone and small stature.
Jason Kneen, a dad from the United Kingdom, recently decided to take to Twitter to start a thread about one of the most common questions he receives: “My child has Down Syndrome, what can I expect?”
“This. 100% this,” Jason wrote, sharing a photo of his daughter Rosie smiling.
"Also expect this," Jason wrote. Along with the hashtag "wouldn't change a thing."
The photos garnered thousands of retweets and comments, inspiring Jason to start a thread about his experience of raising a child with Down's Syndrome. He wrote:
"Overwhelmed with the replies, likes and comments about this post and thread — and thank you to everyone sharing their own stories and photos here. "
Jason wrote that he was “totally NOT ready for a child like Rosie,” but said that things changed almosy instantly. “Quickly I realized that ANY child can be slow to talk; slow to walk; have learning difficulties,” he tweeted. “ANY child can be brilliant & wonderful and amazing.”
Jason detailed all the trials his daughter has “bravely” fought — including pneumonia. “She continues to enjoy life, every day, and reminds us and ME how fun it all is,” he continued.
Like any child Rosie has been through it — we’d been through febrile convulsions with 2 before Rosie was born, and whilst she avoided that, she suffered badly with Bronchiolitis and was in hospital for a couple of weeks with @binkyboobar in 2015— Jason Kneen (@jasonkneen) February 22, 2019
Just before Christmas 2017 she was taken into hospital again with the same, but that also turned into Pneumonia— @binkyboobar was with her for the first couple of days but we had a newborn baby and it wasn’t practical to have them all in hospital.— Jason Kneen (@jasonkneen) February 22, 2019
While in the hospital for one of her illnesses, Rosie and Jason watched a lot of Moana. That detail attracted a reply from Dwayne the Rock Johnson. "Look at this lovely cookie," Johnson tweeted. "Stay strong Rosie! Uncle Maui loves ya. What can I saaaaayy except you’re welcome."
Rosie I and became thick as thieves over that time and watched Moana together many times and EVERY SINGLE DAY — thanks @TheRock for teaching me all the songs :) — Rosie was so brave, and so strong.— Jason Kneen (@jasonkneen) February 22, 2019
This is her, with assisted oxygen, watching Moana.
In response to the thread, other parents also took to Twitter to share what to expect from a child with Down's Syndrome.