Dan Bezzant's son, Jackson, lives with Treacher Collins syndrome.
The illness affects the development of bone and tissue on a person's face, and it varies greatly in severity. Some children are born with cleft palates, and in extreme situations, an individual's respiratory functions can be threatened by the disease. Those born with the syndrome who are fortunate enough to have access to care can undergo corrective surgery to reconstruct their faces. Depending on how much of a person's face is affected by the disease, much of their young lives are spent on and off the operating table.